'Pushy parents' who demand results from
doctors can unwittingly be harming their child's health,
researchers warn.
A study by Institute of Child Health experts
looked at cases where children suffered unexplained abdominal
pain.
Despite doctors carrying out the necessary
tests and finding no physical cause, parents refused to
accept the medical team's conclusions.
The Archives of Disease in Childhood study
warned that this can extend the child's suffering.
Functional abdominal pain causes severe
stomach ache, and often vomiting, and affects up to one
in 10 children.
It can lead to children being admitted
to hospital but there is no known physical cause, although
stress and other psychological factors can make symptoms
worse.
Parents are often unwilling to accept that
there is no cause and assume doctors have missed something,
subjecting their children to tests they do not need and
taking them to other specialists to try to determine a cause
for their child's illness.
'Lost faith'
In this study, doctors looked back at 23
cases of children with unexplained severe abdominal pain
referred to Great Ormond Street Hospital between 1997 and
2001.
They had all undergone checks, including
blood tests, ultrasound and endoscopy.
Fifteen had already been seen by at least
two consultants before they were seen at Great Ormond Street.
Two of the children had seen seven doctors
prior to their referral.
Seven families had asked for extra tests
to be carried out, even though there was no clinical indication
they were necessary. Only two were successful, and in neither
case did the results change the diagnosis.
Many parents had lost faith in the medical
profession and were aggressive or confrontational with the
GOSH doctor.
Twelve families made a formal complaint
about the care their child received, hoping to persuade
doctors into carrying out more investigations.
And, despite the link with psychological
factors, only 13 families accepted referral to psychological
services.
In 12, a high degree of family conflict
or dysfunction had been seen, and parents were unaware of
the potential impact this could have on their child's illness.
Eleven of these children improved after
psychological support and resumed normal activities within
a year.
Of the 10 families who refused psychological
help, only three children eventually improved.
In each of these cases, the families accepted
the role psychological factors played.
'Familiar'
Writing in the Archives of Disease in Childhood,
the researchers, led by Dr Keith Lindley, said: "The study
of children with FAP illustrates the dangers of 'healthcare
consumerism' in families who lack insight into the origins
of their child's symptoms and how this can lead to an abuse
of the hospital's complaints procedures which risks compromising
the child's physical wellbeing."
They added: "Robust systems are needed
to protect the child, and perhaps their physician, from
the effects of healthcare consumerism."
Dr Harvey Markovitch, spokesman for the
Royal College of Paediatrics and Child Health, told the
BBC News website: "I think all paediatricians reading this
paper will find its conclusions very familiar.
"What it showed was those who know their
rights and wanted them, in the main, didn't seem to help
their child at all.
"All they managed to do was upset their
doctors and cause their children to be over-investigated."